Data sharing and patient outcomes

The covid-19 pandemic has demonstrated how data can be used to improve patient outcomes, underpin essential research into vaccines and therapies but also how to improve the delivery of services. In both the UK and globally, this has worked best where health systems and industry have collaborated closely, driven by safe, secure and effective sharing of data. This is particularly important given the historical context of previous attempts to expand the sharing of health data in the UK, which remain at the forefront of the public’s mind.

Panel discussion with Matthew Swindells, Former Deputy CEO of NHSE; Jonathan McKee, Head of IG at Cerner and President-Elect, Medicine and Society Section at the Royal Society of Medicine; Natalie Banner, Lead, Understanding Patient Data; Dr Carl Brookes, Consultant, Hampshire Hospitals NHS Foundation Trust; Harpreet Sood, Adviser and Board Member of Health Education England.

They discussed:

• How has covid-19 incentivised data sharing in health and care, and what has the response been from practitioners and patients?
• What does the pandemic mean for the debate around health data sharing?
• What cultural and regulatory changes could deepen collaboration between clinical practice and research?
• How do you define 'public benefit' for data use?
• To what extent will the transition of Integrated Care Systems drive the data interoperability agenda between patients, clinicians and the public?